Title

Do Spirituality, Resilience and Hope Mediate Outcomes among Family Caregivers After Traumatic Brain Injury or Spinal Cord Injury? A Structural Equation Modelling Approach

Author Faculty (Discipline)

Nursing

Document Type

Article

Publication Date

2020

JOURNAL

NeuroRehabilitation

VOLUME NUMBER

46

ISSUE NUMBER

1

PAGE NUMBERS

3-15

ISSN

1878-6448

ANZSRC / FoR Code

170106 Health, Clinical and Counselling Psychology| 170111 Psychology of Religion| 111004 Clinical Nursing: Tertiary (Rehabilitative)

Avondale Research Centre

Lifestyle and Health Research Centre

Reportable Items

C1

Abstract

BACKGROUND: A deficits approach to understanding psychological adjustment in family caregivers of individuals with a neurological disability is extensive, but further research in the field of positive psychology (spirituality, resilience, hope) may provide a potential avenue for broadening knowledge of the family caregiver experience after traumatic brain injury (TBI) or spinal cord injury (SCI). OBJECTIVE: To test a proposed model of spirituality among family caregivers of individuals with TBI or SCI, using structural equation modelling (SEM). METHODS: A cross-sectional design was employed to survey ninety-nine family participants (TBI = 76, SCI = 23) from six rehabilitation units from NSW and Queensland. Assessments comprised Functional Assessment of Chronic Illness Therapy-Spiritual Well-being Scale-Expanded, Connor –Davidson Resilience Scale, Herth Hope Index, and three measures of psychological adjustment including Caregiver Burden Scale, Positive and Negative Affect Scale, and Depression Anxiety Stress Scale. RESULTS: SEM showed the proposed model was a good fit. The main findings indicated spirituality had a direct negative link with burden. Spirituality had a direct positive association with hope which, in succession, had a positive link with resilience. Spirituality influenced positive affect indirectly, being mediated by resilience. Positive affect, in turn, had a negative association with depression in caregivers. CONCLUSIONS: This study contributes to better targeting strength-based family interventions.

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