Bureaucracy and Burden: An Intersectionality-Based Policy Analysis of Social Welfare Policy with Consequences for Carers of People with Life-Limiting Illness

Simple item page
avondale-bepress-to-dspace.facultyNursing
avondale-bepress-to-dspace.peer_review_statusPeer reviewed before publication
avondale-bepress.abstract<p><h3>Background:</h3></p> <p>For informal carers of people with life-limiting illness, social welfare policy related to income support and housing has been associated with varied psychosocial issues, yet remains relatively under-explored. An intersectional approach offers potential to illuminate diverse experiences and implications. <h3>Aim:</h3></p> <p>To explore the way in which caring in the context of life-limiting illness is framed within welfare policy, to articulate inequities encountered by carers, and to identify policy and practice recommendations. <h3>Design:</h3></p> <p>The Intersectionality-Based Policy Analysis (IBPA) Framework was used to situate findings of a broader qualitative study. <h3>Setting/participants:</h3></p> <p>Data were collected via semi-structured interviews with participants who were bereaved carers (<em>n</em> = 12), welfare workers (<em>n</em> = 14) and palliative care workers (<em>n</em> = 7), between November 2018 and April 2020, in an Australian region associated with socioeconomic disadvantage. Five elements of IBPA were applied to the products of analysis of this data. <h3>Results:</h3></p> <p>Use of the IBPA Framework revealed that representations of carers and causes of their welfare needs in policy were underpinned by several assumptions; including that caring and grieving periods are temporary or brief, and that carers have adequate capacity to navigate complex systems. Policy and processes had differentiated consequences for carers, with those occupying certain social locations prone to accumulating disadvantage. <h3>Conclusions:</h3></p> <p>This intersectional analysis establishes critical exploration of the framing and consequences of welfare policy for carers of people with life-limiting illness, presented in a novel conceptual model. Implications relate to intersectoral development of structural competency, responsiveness to structurally vulnerable carers in clinical practice, and needed policy changes.</p>
avondale-bepress.articleid1264
avondale-bepress.authorsKristin Bindley
avondale-bepress.authorsJoanne Lewis
avondale-bepress.authorsJoanne Travaglia
avondale-bepress.authorsMichelle DiGiacomo
avondale-bepress.context-key32232381
avondale-bepress.coverpage-urlhttps://research.avondale.edu.au/nh_papers/263
avondale-bepress.document-typearticle
avondale-bepress.field.author_faculty_disciplineNursing
avondale-bepress.field.avon_earlyonline2022-09-16T00:00:00-07:00
avondale-bepress.field.comments<p>Due to copyright restrictions this article is unavailable for download.</p>
avondale-bepress.field.custom_citation<p>Bindley, K., Lewis, J., Travaglia, J., & DiGiacomo, M. (2023). Bureaucracy and burden: An intersectionality-based policy analysis of social welfare policy with consequences for carers of people with life-limiting illness. <em>Palliative Medicine, 37(</em>4), 543-557. https://doi.org/10.1177/02692163221122289</p>
avondale-bepress.field.doihttps://doi.org/10.1177/02692163221122289
avondale-bepress.field.email_boxtrue
avondale-bepress.field.embargo_date2022-11-13T00:00:00Z
avondale-bepress.field.field_of_education06 Health
avondale-bepress.field.for_20214206 Public health
avondale-bepress.field.issn0269-2163
avondale-bepress.field.issue_number4
avondale-bepress.field.journalPalliative Medicine
avondale-bepress.field.page_numbers543-557
avondale-bepress.field.peer_reviewBefore publication
avondale-bepress.field.publication_date2023-04-01T00:00:00Z
avondale-bepress.field.reportable_itemsC1
avondale-bepress.field.research_centreLifestyle Medicine and Health Research Centre
avondale-bepress.field.source_fulltext_urlhttps://doi.org/10.1177/02692163221122289
avondale-bepress.field.staff_classificationPermanent
avondale-bepress.field.volume_number37
avondale-bepress.keywordssocial welfare policy
avondale-bepress.keywordscarers
avondale-bepress.keywordsillness
avondale-bepress.keywordsburden
avondale-bepress.label263
avondale-bepress.publication-date2023-04-01T00:00:00Z
avondale-bepress.publication-titleNursing and Health Papers and Journal Articles
avondale-bepress.statepublished
avondale-bepress.submission-date2022-11-13T16:39:12Z
avondale-bepress.submission-pathnh_papers/263
avondale-bepress.titleBureaucracy and Burden: An Intersectionality-Based Policy Analysis of Social Welfare Policy with Consequences for Carers of People with Life-Limiting Illness
avondale-bepress.typearticle
dc.contributor.authorDiGiacomo, Michelle
dc.contributor.authorTravaglia, Joanne
dc.contributor.authorLewis, Joanne
dc.contributor.authorBindley, Kristin
dc.date.accessioned2023-11-01T00:35:26Z
dc.date.available2023-11-01T00:35:26Z
dc.date.issued2023-04-01
dc.date.submitted2022-11-13T16:39:12Z
dc.description.abstract<p><h3>Background:</h3></p> <p>For informal carers of people with life-limiting illness, social welfare policy related to income support and housing has been associated with varied psychosocial issues, yet remains relatively under-explored. An intersectional approach offers potential to illuminate diverse experiences and implications. <h3>Aim:</h3></p> <p>To explore the way in which caring in the context of life-limiting illness is framed within welfare policy, to articulate inequities encountered by carers, and to identify policy and practice recommendations. <h3>Design:</h3></p> <p>The Intersectionality-Based Policy Analysis (IBPA) Framework was used to situate findings of a broader qualitative study. <h3>Setting/participants:</h3></p> <p>Data were collected via semi-structured interviews with participants who were bereaved carers (<em>n</em> = 12), welfare workers (<em>n</em> = 14) and palliative care workers (<em>n</em> = 7), between November 2018 and April 2020, in an Australian region associated with socioeconomic disadvantage. Five elements of IBPA were applied to the products of analysis of this data. <h3>Results:</h3></p> <p>Use of the IBPA Framework revealed that representations of carers and causes of their welfare needs in policy were underpinned by several assumptions; including that caring and grieving periods are temporary or brief, and that carers have adequate capacity to navigate complex systems. Policy and processes had differentiated consequences for carers, with those occupying certain social locations prone to accumulating disadvantage. <h3>Conclusions:</h3></p> <p>This intersectional analysis establishes critical exploration of the framing and consequences of welfare policy for carers of people with life-limiting illness, presented in a novel conceptual model. Implications relate to intersectoral development of structural competency, responsiveness to structurally vulnerable carers in clinical practice, and needed policy changes.</p>
dc.description.versionBefore publication
dc.identifier.citation<p>Bindley, K., Lewis, J., Travaglia, J., & DiGiacomo, M. (2023). Bureaucracy and burden: An intersectionality-based policy analysis of social welfare policy with consequences for carers of people with life-limiting illness. <em>Palliative Medicine, 37(</em>4), 543-557. https://doi.org/10.1177/02692163221122289</p>
dc.identifier.doihttps://doi.org/10.1177/02692163221122289
dc.identifier.issn0269-2163
dc.identifier.urihttps://research.avondale.edu.au/handle/123456789/32232381
dc.language.isoen_us
dc.rights<p>Due to copyright restrictions this article is unavailable for download.</p>
dc.subjectsocial welfare policy
dc.subjectcarers
dc.subjectillness
dc.subjectburden
dc.titleBureaucracy and Burden: An Intersectionality-Based Policy Analysis of Social Welfare Policy with Consequences for Carers of People with Life-Limiting Illness
dc.typeJournal Article
Files
Collections
Nursing & Health
Lifestyle Medicine And Health Research Centre